So everytime I write something about Lily's eyes I think of that song from The Secret Garden. Lily had an eye appointment yesterday. It was a lot of fun, just like always. It's the first time I've ever been there so I got directions from mapquest. Problem- the exit I needed was closed... so I was hopelessly lost. I asked directions at a gas station and finally found the place. The doctor was super busy so we were in his office for about THREE hours. That's a lot of fun with a three year old and a baby. The long and short of it is her prescription has changed again, so she is getting another contact. She still has poor eye movement in her left eye and has a lot of problems with going cross-eyed. Now for the best part of our visit--- We get to increase her eye patching time from 1 hour to half of the day. Instead of having to hold her or sit right next to her (to prevent her from getting her patch off, which she is very good at) for one hour, I get to do that for half of the day. The doctor said that if I have a hard time getting her to keep the patch on I can put socks on her hands or they have these special arm restraints that prevent her from bending her arms. As he said that, I could just picture my little Lily laying on the ground not able to move her legs because of the cast, not able to move her arms because of the restaints, with her patch on her eye for hours each day. I declined the arm restraints. We will try patching her eye for longer each day to see if we can help it... if not, she gets to have another surgery to fix the problem.
So we left. I got in the car and started crying, then found a park and took the kids to play. I was depressed about the whole thing last night but since I can't change anything I will just have to deal with it. So this morning we did our first day of a longer patch time. We lasted three hours (not half the day but three times as much as we are used to). Ollie (who didn't seem to be listening yesterday) wanted to know if Lily needed socks to put on her hands. I explained to him that we just need to try to keep Lily happy and give her toys so she doesn't take the patch off. I just can't bear to not let her use her hands.
Well nap time is over and I can hear two little kids wanting their mommy. :)
1 week ago
2 comments:
Oh! I'm sooo sorry, Shre! That is just plain miserable! And I think I'd want to kick your doctor- he doesn't sound very empathetic!
I really enjoyed your news.
Lily looks great in her tu tu.
I'll be thinking of you with the eye patch problem. What a challenge!
Dianne Anderson
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